Document Type
Article (Restricted)
Publication Date
1-1-2007
Abstract
OBJECTIVES: Determination of the psychosocial status and assessment of the level of satisfaction in Malaysian cleft palate patients and their parents. DESIGN: Cross-sectional study. PARTICIPANTS AND METHODS: Sixty cleft lip and palate patients (12 to 17 years of age) from Hospital Universiti Sains Malaysia and their parents were selected. The questionnaires used were the Child Interview Schedule, the Parents Interview Schedule, and the Cleft Evaluation Profile (CEP), administered via individual interviews. RESULTS: Patients were teased because of their clefts and felt their self-confidence was affected by the cleft condition. They were frequently teased about cleft-related features such as speech, teeth, and lip appearance. Parents also reported that their children were being teased because of their clefts and that their children's self-confidence was affected by the clefts. Both showed a significant level of satisfaction with the treatment provided by the cleft team. There was no significant difference between the responses of the patients and their parents. The features that were found to be most important for the patients and their parents, in decreasing order of priority, were teeth, nose, lips, and speech. CONCLUSIONS: Cleft lip and/or palate patients were teased because of their clefts, and it affected their self-confidence. The Cleft Evaluation Profile is a reliable and useful tool to assess patients' level of satisfaction with treatment received for cleft lip and/or palate and can identify the types of cleft-related features that are most important for the patients.
Keywords
Adolescent Adult Child Cleft Lip/complications/*psychology/surgery Cleft Palate/complications/*psychology/surgery Cross-Sectional Studies Female Humans Interpersonal Relations Male Parents *Patient Satisfaction Physician-Patient Relations Questionnaires *Self-Assessment *Social Adjustment Statistics, Nonparametric
Publication Title
Cleft Palate Craniofac J
Volume
44
Issue
3
Additional Information
Noor, Siti Noor Fazliah Mohd Musa, Sabri Cleft Palate Craniofac J. 2007 May;44(3):292-303.